Organization
USH2025
USH2025 is organized by Stichting Ushersyndroom (www.ushersyndroom.nl).
The SCIENTIFIC COMMITTEE is formed by:
- Erwin van Wijk (Radboudumc, Nijmegen NL)
- Gwenaelle Geleoc (Boston Children’s Hospital, Boston US)
- Jennifer Lentz (LSU School of Medicine, New Orleans US)
- Jeffrey Holt (Boston Children’s Hospital, Boston US)
- Eliot Shearer (Boston Children’s Hospital, Boston US)
- Erik de Vrieze (Radboudumc, Nijmegen NL)
The organizing committee is formed by:
- Nico de Milliano, Project Leader
- Ivonne Bressers, Chairman of Stichting Ushersyndroom
- Carin de Bruin, Marketing & Communications
- Rob Dierckx, Communications
- Paula Wijkamp, Participants registration
- Gretha Dijkstra and Liesbeth Geerits, Accessibility
- Krista Vasi, Communications & Sponsoring
Stichting Ushersyndroom works closely with:
- Usher Syndrome Coalition - United States
- Usher Syndrome Ireland - Ireland
- Usher Kids Australia - Australia
- Save Sight Now Europe - Spain / Switzerland
- Usher Syndrome Society - United States
- Usher Initiative Austria - Austria
- Ava’s Voice - United States
- Usher Kids UK - United Kingdom
- Ush One See - United States
- NoisyVision - Italy
- Cure Usher - United Kingdom
- Horizion Usher Foundation - France
- Contactgroep Ushersyndroom - The Netherlands
Contact information
For all your questions about USH2025 or if you would like to help as a volunteer, please contact us.