Organization

USH2025

USH2025 is organized by Stichting Ushersyndroom (www.ushersyndroom.nl).

The SCIENTIFIC COMMITTEE is formed by:

  • Erwin van Wijk (Radboudumc, Nijmegen NL)
  • Gwenaelle Geleoc (Boston Children’s Hospital, Boston US)
  • Jennifer Lentz (LSU School of Medicine, New Orleans US)
  • Jeffrey Holt (Boston Children’s Hospital, Boston US)
  • Eliot Shearer (Boston Children’s Hospital, Boston US) 
  • Erik de Vrieze (Radboudumc, Nijmegen NL)

  

The organizing committee is formed by: 

  • Nico de Milliano, Project Leader 
  • Ivonne Bressers, Chairman of Stichting Ushersyndroom 
  • Carin de Bruin, Marketing & Communications 
  • Rob Dierckx, Communications 
  • Paula Wijkamp, Participants registration 
  • Gretha Dijkstra and Liesbeth Geerits, Accessibility
  • Krista Vasi, Communications & Sponsoring

  

Stichting Ushersyndroom works closely with: 

  • Usher Syndrome Coalition         - United States
  • Usher Syndrome Ireland             - Ireland
  • Usher Kids Australia                     - Australia
  • Save Sight Now Europe               - Spain / Switzerland
  • Usher Syndrome Society             - United States
  • Usher Initiative Austria                - Austria
  • Ava’s Voice                                      - United States
  • Usher Kids UK                                - United Kingdom
  • Ush One See - United States
  • NoisyVision - Italy
  • Cure Usher - United Kingdom
  •  Horizion Usher Foundation - France
  • Contactgroep Ushersyndroom - The Netherlands

Contact information

For all your questions about USH2025 or if you would like to help as a volunteer, please contact us.

If you would like to make a financial contribution to the organization of the conference.