On October 8th, Stichting Ushersyndroom [Dutch Usher syndrome Foundation] officially opens its second international call for researchers: the Usher Crusher Grant. This grant offers scientists worldwide the chance to elevate research on Usher syndrome to new heights. Building on the success of the 2023 ‘Moon Rocket Grant,’ which funded two promising research projects, the Usher Crusher Grant will provide significant support for groundbreaking research.
We invite international scientists to take advantage of this unique opportunity and submit their most innovative research proposals
Valued at €300,000, the Usher Crusher Grant aims to make a substantial contribution to research that aligns with our ultimate moonshot goal: “By 2030, the Netherlands and the world will be aware of Usher syndrome, and its diagnosis, treatment, and care will have become standard practice.”
A powerful boost for groundbreaking scientific research
Stichting Ushersyndroom seeks not only to facilitate scientific breakthroughs but also to actively steer the direction of research. We feel the responsibility to advance scientific studies on all types of Usher syndrome and call on researchers to contribute their expertise within the four key themes of our research agenda:
- Diagnostics & Prognostics: Our goal is to achieve a genetic diagnosis for everyone with Usher syndrome and improve detection for those without a known DNA diagnosis.
- Fundamental Research: Understanding the causes of Usher syndrome is crucial for better diagnostics and treatments, and we aim to explore the underlying mechanisms..
- Biomarkers & Endpoints: Measurable indicators are needed to track clinical progression and assess the effectiveness of treatments in therapeutic studies.
- Treatment: Our focus is on treatments aimed at slowing or halting disease progression, improving vision, hearing, and balance, and reducing other symptoms such as sleep disturbances.
These themes pave the way for improved diagnosis, care, and treatment for people with Usher syndrome worldwide.
International scientists can submit their proposals now
Winners announced at USH2025
The call for research proposals closes on Rare Disease Day, February 28, 2025. The winner(s) of the Usher Crusher Grant will be announced during the International Symposium on Usher Syndrome (USH2025), taking place on June 19, 20, and 21, 2025, in Nijmegen. This symposium will bring together scientists, clinicians, patients, and their families from around the world to share knowledge, discuss the latest developments in Usher syndrome research, and connect with one another.
With the Usher Crusher Grant, we invite and challenge international scientists to collaborate on building a future where Usher syndrome no longer imposes limits on people’s lives. Together, we can create a world without boundaries, without restrictions, and without Usher syndrome.
More information about the Usher Crusher Grant can be found on the website of Stichting Ushersyndroom.
